The story behind "La esperanza nos está matando"

My father had so little time with his parents: He lost his mom as a young child, and his dad when he was just 21.

As a kid for me some 20-30 years later, l never fully appreciated how difficult that was for my father. How many birthdays and death days passed that weighed heavy on his heart while I was wholly ignorant of his grief.

He’d talk about them from time to time though. Mostly sad stories that pointed to a rough childhood, but he’d also talk about how he wished his dad had gotten to meet my siblings and me. He talked about camping trips “up north” that were the highlight of his youth. And he’d talked about these videos that he and 2 of his brothers (and occasionally their father) had shot with an old 8 mm camera that were stowed away in his youngest brother’s basement. He’d sometimes bemoan the lack of photos of his parents — he only had one of his mom and 2-3 of his dad — and said he hoped to one day show me those reels.

But years passed. Decades, even. And he never got to show them to me.

Fast forward to 2020 when our whole world fell apart. After losing my father slowly for years to a devastating neurodegenerative disease, we lost him altogether in 2020 right as we were ramping up a fight to get my mom on a transplant list. She fought valiantly in the midst of a global pandemic; beat the odds; and made the list. And yet just six months after we lost my father, we lost her, too.

And nestled between their two deaths — the bookends of an unfailingly cruel year — was the loss of my father’s youngest brother.

We suffered through these losses, and more, at a time when the world was shutdown. At a time when funerals were delayed, and all potential outlets to distract from our grief were closed or unsafe, particularly as one doctor told me a trauma-induced illness I developed following the loss of my parents put me at an elevated risk.

But then, some light: My cousin found those old reels when going through her father’s things and took it upon herself to digitize them by hand. And when she was finished, she did something that was especially kind: She put copies onto thumb drives and sent them to all of the cousins. That 2-inch piece of plastic became the most precious gift.

For the first time in my life, I could see the home videos my father had talked about. And the thing that surprised me the most — the thing that made me the happiest — was seeing all of the love that had been part of his family life. I could see his own father laughing and smiling and walking and skating. I could see many of his siblings (and his own grandmother!) coming together for a high school graduation party. I could see his father pretending to cry as he waved him away to college. I got to see inside his childhood home and rode along with him on some of those trips up north. And much to my surprise, the reels spanned longer than I realized and even included his courtship and subsequent marriage to my mother. A trip to the zoo with my brother and sister as small children (a few years before I made my grand entrance into the world) was the last of the reels.

I watched one video after another awash with contradiction: sadness and joy, grief and celebration. Clarity to see some of my dad’s stories come to life; confusion at the numbers of faces and places I didn’t recognize. I was beyond elated to finally get to see these reels and yet: Devastated that my father wasn’t watching them with me.

But even beyond my family connection to these videos, there was something that resonated with my inner photographer: A certain artistry in how they captured angles, motion and light. A celebration of family, this planet, and life. A living, breathing history of a bygone era.

I asked my husband, who was midway into recording an album that was spurred by the loss of my parents in the midst of the pandemic, if he was working on any songs where these reels “fit.”

He responded “yes” without pausing and told me more about the song: “La esperanza nos está matando” (“The hope is killing us”). As he finished work on it, I set about taking 2+ hours of footage that spanned nearly 2 decades and whittled it down to 4 minutes and 40 seconds. It was no easy task — there is so much wonderful footage — but I kept my focus on the song, and the pacing, and with time it all fell into place.

And in more ways than one, honestly: My parents had been so proud to be featured on the cover of my husband’s first album. My dad often wore the shirt bearing an illustration of the cover, and they had the bumper sticker proudly displayed on their car. They mostly listened to 60s rock and country music and only my father spoke Spanish and yet: They loved that little Spanish-language shoegaze album and were among my husband’s biggest fans.

Featuring them in the video for a song about their loss, on an album dedicated to them, just made sense. And yet the video isn’t just for them: It’s for all of those we have lost and those, like my father’s parents, that we never got to meet. It’s for the family and friends who endured these losses with us.

And for those beyond our circle: The ones who marvel at the passage of time. The ones who trudge through the bitter to lap up the sweet. The ones that live and breathe the melodies of the world: The discordant — and the harmonious.

Things Forgotten

One of the best gifts I’ve ever received is little more than an inch long, a fragile thing made of metal and plastic. It arrived on my doorstep two weeks ago, the hard work of a cousin who spent the last several months converting old family reels into digital files.

I knew so very little of my father’s childhood. His mom died when he was a little kid, and his dad passed not long after my father went away to college. What I knew of the years in-between was a very sad time, coping with the loss of his mother and dealing with an abusive stepmother.

My dad spoke of it sparingly, but he would occasionally make the passing remark about how he wished his dad was still around. About how he wished he’d had a chance to meet my siblings and I. I knew he played the saxophone in a band. I knew he was a railroader who was away from home a lot, and he eventually kicked out the woman when he realized how badly she was treating his three youngest kids. I knew he sometimes took my dad and his brothers on trips to lakes “up north” but never realized how frequent or full of joy those trips were (nor how far away they sometimes traveled to get there). I never knew he was the source of my dad’s silly demeanor until I saw him wipe away fake tears and pretend to be devastated when my dad was leaving for college.

Or perhaps he wasn’t really pretending.

All of my childhood, I would hear about these old family reels, tucked away at my dad’s brother’s house. But we never got to see them. Never got to see my grandfather smiling and laughing. Never got to watch this footage with someone who was there (my dad passed away three years ago, as did the brother who had these reels).

It’s been a rough three years. So much death I can hardly stand it. And most recently: a beloved aunt who was like a second mom to me passed away on Christmas.

This past week when everyone was waiting to learn whether or not a groundhog would see its shadow, I whispered a “happy birthday” to her and told her I missed her. Like all of these other recent losses, she was gone too soon. The life expectancy is dropping, and I’m seeing the data that proves it in real time. In real life.

And then we had another bittersweet day yesterday: my dad’s birthday. I had a few reasons to make a trip home to Indiana — baby hand-me-downs for a family member, a birthday present for a niece, etc. What better weekend to plan the trip than on my dad’s birthday? My entire life, no matter where I lived, I made it home for his birthday (or called that day and visited soon thereafter).

As luck would have it, we wound up staying in a lake house “up north” thanks to a friend and her kind family. It was our first time visiting this town and this lake, but being there reminded me of the reels: Was this one of the many lakes he visited with his brothers and their dad? Had they ever stood where I was standing?

I will never know for sure, just as I will never know the names of most of the people in these reels. But I know they are smiling; laughing; enjoying life. I can see they loved my father. That he was happy.

And that, as it turns out, is enough.

The Missing Pieces

It’s been a year.

12 months since I last heard my mother’s voice. 

365 days since I last felt an iota of hope.

I marked the occasion at her home, where I’ve spent the last few months digging through boxes, unearthing parts of my parents that had been tucked away for decades. I’m realizing that as much as I love and miss them, the fact remains that I knew them first and foremost as my parents, and not entirely as the people they were.

I’ve found a treasure trove of letters my mom saved from her time as a school bus driver: notes from students telling her how much she meant to them. Because of her kindness. Because of the interest she showed in their lives.

I’ve found old report cards and citizenship awards: some moldy and ragged at the edges.

I found invitations to their wedding, cards from those who attended and endless mementos whose significance I will never have the chance to understand.

I’ve found photos of them young, happy, smiling: photos of them together, photos of them with family, with friends.

I saw my paternal grandfather’s handwriting for the first time in one of my dad’s high school yearbooks: a brief message that made it clear he believed my dad would be the first in their family to go to college. He lived just long enough to learn he was right.

Elsewhere in the book was a message from my father’s youngest brother. He also died in 2020: just three months after my father and three months before my mother. He was in junior high when he scrawled his message: TO MY DUMB BROTHER.

I laughed out loud when I read those words, knowing that was likely the closest they ever came to swapping terms of endearment.

In other boxes, less pleasant memories – ones I witnessed in real life and in full horror – are also to be found. Old test results. Brain scans. Liver scans. Half-empty pill bottles. Unfinished crossword puzzles.

And the part that really stands out to me — the part I don’t fully understand — is that I feel the same gut punch whether I’m opening a box full of sad memories, or a box full of happy ones.

They are all pieces to the same bittersweet puzzle: a reminder of hope reduced to ash. A reminder of life’s frailty and time’s cruel passing. A reminder of those we are missing.

A reminder that, when they were here, our puzzle was complete.

And the realization that it never will be again.

The Impossible Journey: Overcoming Loss in a Post-Pandemic Future

Waiting for “Do You Believe In Madness?” to begin, just a couple days before the state of Illinois went into lockdown.

A year ago today, I went to Target to find empty shelves but somehow managed to grab one of the last packages of toilet paper. I felt like I’d won the lottery.

A year ago today, my mother-in-law was in town for a rare visit, and my three-year-old daughter eagerly escorted her to a beloved store: a rock shop with dinosaur fossils in the basement. My daughter, now four, hasn’t been inside of a store since.

A year ago today, I was coming down from the high of a rare post-child outing: my husband and I caught a show at The Second City. It was their last revue before they, like other theaters, shut down.

A year ago today, we were realizing that adventure would be our last for awhile. That even though we had so many plans for places to take my mother-in-law — and places to go at night while she babysat our daughter —  our options quickly narrowed to nil.

In fact: she had flown in on my birthday a couple days prior, a time now forever marred in my head as “the beginning of the end.” We were worried about her flight, the airport, all of it. The virus seemed to be airborne but much was still unknown, and masks weren’t yet the norm.

She quarantined in our home for two weeks before going to stay with my mother, who was chronically ill but refusing to move in with us no matter how much I pleaded. She welcomed a visit from my mother-in-law, however, and saw it as an opportunity to get to know someone previously separated by a continent. At the time, we saw it as a light in the dark. My mom, still grieving from the recent death of my father, would have company for a few weeks. But not just any company: a talented chef who knew how to cook a liver-healthy diet so we could hopefully slow my mother’s decline while we battled to get her on a transplant list.

My mother, like us, had so many things she wanted to share with my mother-in-law. People to get to know, waterfalls to observe, antique stores to shop. We had planned on spending weekends and holidays with them, but everything shut down, social distancing was a mandate, and all of those options drifted away. They were alone in a house. We were alone in an apartment 160 miles away. Everyone was alone, and though we video chatted every day just as we had done before, we longed desperately for it all to end.

We thought that if we wore our masks and kept our distance, the virus would have nowhere to go. That after three months of hardship the world would re-open and normal life would resume. But we hadn’t accounted for widespread resistance to safety measures, and this thing just dragged on and on and on and...

It was discouraging, but my mom never gave up. I continued to coordinate her transplant evaluation appointments, though many were postponed indefinitely and others were switched to telehealth visits (a true obstacle for my technologically challenged mother, but she was determined). When in-person appointments resumed, I drove her to several but kept my distance (and my mask on). And then she made the transplant list and the world felt so much brighter again. We were on the right path, and we made plans to move our bubble and stay with her post-transplant. But the light was a mirage, and the closer we got to reality, the more it dimmed. My mother never got to hug my daughter again. The last time she saw me, I was wearing a KN95 mask under a cloth cover. It was red with white birds, their wings spread mid-flight.

Her last conscious moments were with strangers in an ambulance. Their objective: to take her home to die. I asked to ride with her, but it violated COVID protocol. They told me she asked for water but they couldn’t give her any. She fell asleep soon thereafter and never woke up.

 I see her face every time I wear that mask. I think of how thirsty she must have been every time I take a sip of water. I think of her, and how desperately she fought to outlive the pandemic (“So I can hug my grandkids again”), every time I look at the box that holds her ashes.

Some day, we will have a funeral for her and a proper burial for both of my parents. Some day, we will gather again with the people who remain, but we will do so knowing that a return to “normal” is a luxury well beyond our reach. That while the world slowly re-opens and the universe breaths a collective sigh of relief, those of us who suffered loss during the pandemic will be tasked with rebuilding our lives like a contractor building a house without nails.

It is essential that we continue on – and we will – but our world will be new and unfamiliar. We will be charting foreign land in our own backyard, every step forward weighted by memory and lifted by hope.  

What We Have Lost

This has been a year of taking inventory. I count three boxes full of ashes, light and insubstantial, scorched earth where once there was water and weight.  

I can hold my bodybuilding father with a single hand, my mother too, though I wrap both arms around them for good measure. I place them side by side and stare at their oaken reflection in a mirror before my gaze turns to the rest of their once-upon-a-time.  

I count empty beds, empty chairs, empty shirts and shoes. 

I see the Cubs jersey he wore when my big brother was in little league. I see the chess set he made by hand. I see cheap winter boots, still muddy from the last time he wore them.  

I see her hutch full of mementos and tea cups: a collection carefully curated over the course of a lifetime. I see an old cabinet covered in chipped paint that she never got to restore. I see family photos posted alongside grandchildren’s artwork (treasured as if it belonged in a museum).

I see the antique trunks they refurbished together. 

I see the old dictionary he purchased when he was a student, the pages at once crisp and worn following decades of careful use. 

I see the binoculars that accompanied him on trips to his tree stand, where he would watch (but never shoot) deer — the same binoculars she would later use to spy on a family of cardinals that moved into her backyard. 

I see the lists I made when I thought lists might somehow save her.

I see dark where there was once light. Impressions where there was once shape. 

I hear the ringing in my ears where there was once the shuffle of tired feet. 

This has been a year of deprogramming. Of stuttering past the dozens of Pavlovian instincts that marked my day. 

Of taking photos and sending them to no one.  

Of sitting down for lunch and reaching needlessly for my phone. 

Of hearing a pun and clenching my jaw. 

Of seeing a black shadow and waiting for it to move.

It has been a year of distance. Of grandparents disappearing into the dark corners of nursing homes.

Of cancelled play dates and the rise of Zoom.

Of pacing from one white wall to the next and dreaming of life beyond them.

Of relationships strained by politics and politics magnified by social media.

Of six foot distances extrapolated by an infinitude of months.

It has been a year without distraction. A year without movies, without theater, without concerts.

A year without relief. A year where the agony of loss upon loss upon loss has been compounded by the total and absolute lack of everything and everyone.

A year where nerve damage climbed onto grief’s back and clawed its way out, leaving a trail of scars in its wake.

This is our broken year. I pick up the pieces and swallow them whole, dust and decay where once there were stars.